Considering my hair thinning/loss over the past five years too, I wouldn’t be surprised if I have an autoimmune condition or possibly a thyroid issue. But I remember having swollen glands a lot as a kid, and in spots they’re propping back up amidst weight loss. I want to go to the doctor for peace of mind, I lost my mother to cancer last year and fear the same fate. I’ve lost a good bit of weight the last year or so, but have also had a major lifestyle change along with working. But they’re on the softer side, and hurt if I press on them the right way. On both sides of my neck, in the same spot on either side. My lymph nodes in my neck, just below my jaw, are rather large. I have a long history of illness (mono when I was a kid, strep a few dozen times, pneumonia, a run in with COVID, HFMD 20ish, multitude of ear infections when I was young as well). This thread has been very reassuring amidst a slew of anxiety. Clinically speaking, a lymph node is only classified as enlarged when the diameter is more than a cm) So far, they all remain the same size since I found em. I am going to repeat the ct scan in 6 months to see if any new lymph nodes have grown. All these doctors kept saying that lymph nodes remain swollen permanently after bad infections because of scar tissue build up (fibrosis). The one thing they found was a classified granuloma in the lung which suggests a previous bad infection. The lymph nodes are under a centimeter in diameter which classifies it as normal and the fatty hilum is present, which makes it benign. Also had a bunch of blood tests.Įverything came back normal. I had a bunch of ultrasounds done, one CT scan for my neck then after a year and a half had another CT scan for neck, lung and abdomen. I saw an ENT, 2 hematologists (one of which is well known and a director of a research center), an immunologist, and an oncology surgeon. I have a lymph node in my neck and behind my head for 7 years or so since I discovered them. It is sub-centimeter and has no indication of malignancy. The report said it was tiny (.4cm) and demonstrates a fatty hilum. Update: I had an ultrasound done on my clavicle one. I do plan to ask for another ultrasound on them just to check up on them, since the last one was 5 years ago. If it ever happens that they do turn into cancer I guess I'll come back here and update you guys, but until then, consider me another one of those weirdos with persistent generalized lymphadenopathy and no answers as to why. I have not any CT / biopsies on them because the ultrasounds were reassuring enough to my doctor. In any case, as far as my doctor can tell they are currently not cancer, so therefore they must be benign. (especially the collarbone one, because nearly all sites will say it's a worrisome find! I even had an ENT tell me that he would worry about it if found in an adult. I try to stay calm about them, but they still do represent a source of anxiety despite not growing. And you see people saying their doctor said their thinness may be why they can feel them. I recently read (on wikpedia mind you) that cervical lymph nodes may be palpable in around 20% of adults. Either you have an infection or you have cancer, yet we see so many anecdotal stories of people having persistently palpable lymph nodes and feeling no peace about it because they are not being told it can be normal. I think this particular issue is hard because everything online seems so black and white. (because I am still very anxious about them.) They get hard if I have an infection or if I rough them up during an anxiety attack about them. They have not grown, and I would describe them as soft. 2 (or 3) ultrasounds came back normal, and a lot of blood work since then has never raised suspicion. (therefore classified normal) I also have a teeny one in my right collarbone area (supraclavicular) and one in my groin. The neck ones are rather long (an ultrasound measures one long axis at >2.5cm) but the short axis on all of them are under a cm. I noticed a bunch of lymph nodes on the left side of my neck when I was around 16 after a bad bacterial / subsequent viral thing.
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